What Comes Next? A Parent’s Guide After an Autism Diagnosis
According to the Centers for Disease Control and Prevention (CDC), the latest data from their 2023 Autism and Developmental Disabilities Monitoring (ADDM) Network report shows that 1 in 36 children in the U.S. is diagnosed with autism. This marks a significant increase from previous years, reflecting both greater awareness and improvements in diagnostic practices. As more families receive this diagnosis, a common question arises: “What do we do now?”
An autism diagnosis can bring up many emotions and challenges, and parents often feel overwhelmed. At Beyond The Spectrum ABA Therapy (BTS), we understand that the journey following an autism diagnosis can be filled with uncertainty and many questions. Our goal is to guide you through the next steps, offering resources, tools, and support to help your child thrive.


Step One: Understanding Autism Spectrum Disorder (ASD)
Autism Spectrum Disorder (ASD) is a developmental condition that affects how individuals communicate, interact socially, and engage with their environment. While every child with autism is unique, common traits include difficulty with social interaction, challenges in communication, and a preference for routines or repetitive behaviors.
Though the exact causes of autism are still being studied, research suggests a combination of genetic and environmental factors may contribute. Early signs of autism can appear as early as two years old, and early intervention is critical in helping children develop essential skills and coping strategies.
Some known risk factors for ASD include:
- Family history of autism: Having a sibling or close family member with autism increases the likelihood of a child being diagnosed.
- Genetic conditions: Certain conditions like Fragile X syndrome, Down syndrome, and other genetic disorders are linked with a higher risk of autism.
- Older parental age: Children born to older parents, particularly older fathers, have an increased risk.
- Premature or low birth weight: Babies born prematurely or with very low birth weight are at higher risk for developmental conditions, including autism.
- Sex: Boys are more likely to develop autism than girls, with a four-to-one ratio.
Step Two: Navigating Treatment Options
Beware of treatments that lack scientific evidence:
- Claims that a treatment will “cure” autism or “reverse” the diagnosis.
- Therapies that promise quick fixes or “instant results.”
- Treatments based on unproven methods or religious principles.
Step Three: The Importance of ABA Therapy
What is ABA Therapy?
Applied Behavior Analysis (ABA) therapy is a well-established, evidence-based approach that helps children with autism learn new skills, reduce challenging behaviors, and gain greater independence. ABA focuses on using positive reinforcement and other principles of behavior science to teach communication, social skills, and adaptive behaviors.Key Benefits of ABA Therapy:
- Improved Communication: ABA helps children with autism develop both verbal and non-verbal communication skills.
- Social Skills Development: ABA teaches children how to engage in social interactions and navigate social situations.
- Increased Independence: ABA helps children acquire essential life skills, such as dressing, feeding themselves, and managing daily routines.
- Reduced Challenging Behaviors: ABA helps replace harmful behaviors (e.g., aggression, self-injury) with more appropriate alternatives.
Step Four: Finding the Right ABA Provider
What to Look for in an ABA Provider:
- Customized Goals: A good ABA therapist will create a personalized treatment plan based on your child’s strengths and challenges.
- Behavior Support Plans (BSP): If your child exhibits challenging behaviors like tantrums or aggression, a BSP should be in place to address these behaviors in a constructive way.
- Family Involvement: Your child’s treatment plan should involve family members and caregivers to create a consistent and supportive environment.
- Fun and Engaging Sessions: Therapy should be enjoyable and motivating for your child. A positive relationship with the therapist will help maintain your child’s interest and progress.
- Ongoing Monitoring: High-quality ABA providers track progress regularly and adjust the plan to ensure that skills are retained and built upon.
Step Five: Reliable Resources for Parents
Trusted Research and Resources:
- Autism Research Institute
- Autism Science Foundation
- National Institute of Mental Health (NIMH)
Parenting and Support Resources:
- Autism Parenting Magazine
- Autism Support Networks
- Your Autism Coach
Educational Tools and Apps:
- Autism Classroom Resources
- Best Autism Apps for Kids (2023)
- Social Skills Stories and Tools
Step Six: Prioritizing Self-Care as a Parent
Self-Care Tips for Parents:
- Rest and Recharge: Make sure you’re getting enough sleep and taking breaks when needed. Even short periods of rest can help you rejuvenate.
- Stay Organized: Managing appointments, therapy sessions, and daily routines can be challenging. Use planners or apps to keep track of important dates.
- Reach Out for Support: Joining a parent support group or finding a therapist for yourself can offer comfort and perspective.
- Ask for Help: Don’t hesitate to rely on friends, family, or professionals when you need extra support. Remember, taking care of yourself is not only important for your own well-being, but it also helps you to be a better caregiver to your child.
Step Seven: Educating Your Child and Family About Autism
Tips for Explaining Autism to Your Child:
- Be Positive: Emphasize your child’s strengths and encourage them to appreciate what makes them unique.
- Be Honest: Use simple, clear language to explain autism in a way that is age-appropriate and easy for them to understand.
- Encourage Self-Acceptance: Help your child understand that having autism doesn’t mean they are less capable—just that they experience the world in a different way.
We’re Here to Help You Every Step of the Way
At Beyond The Spectrum ABA Therapy (BTS), we are dedicated to supporting families through the complexities of autism diagnosis and treatment. Our team is here to help you find the right therapy, resources, and community support. Together, we can work towards a brighter future for your child.Reach out today to learn more about our services, book a consultation, or get more information on how we can support you and your family.